Countdown

Sleepover with my girls:) Summer is almost over but for us it is not the only event we are counting down to. The little brunette, Cecily, is moving to Italia in a little over a week. We are going to miss her so so so much...Last night we dug up this old notebook that the three of us used to pass around in middle school-like passing notes but sneakier;) We were so dorky and LAME! But I suppose it is a faze we all have to go through? What I like to go by: "Life is like a big 'ol zit: It has to get worse before it gets better"...I think that applies to what I'm talking about...Anyway this is what I wore out with Sylena and Cec for a bite out at Potbellies(YUMMM). This shirt is an old concert T that I wear literally once a week. It goes with everything. Then the tap shorts are also one of my faves because they look fabulous with everything and they totally confuse people on whether or not they are shorts or a skirt or what? I like the look of something more glamorous(like the necklace) with a plain T. It is my go-to. Also we watched Some Like it Hot. Along with it being my first Marilyn movie, it was also super fantastic. Def in my fave 20:) But in it she hides a flask in her thigh-high nylons (or whatever its called) so we were overjoyed when we spotted the sketchy flasks they sell in Icing. ALSO the first pic: out of Zink! magazine-I decided that if I died my hair I would dye it this color. Loud 'n proud.
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P.S. My grandma dropped off my new car! It is a blue sparkly Lexus. I am so looking forward to spending some quality time with it.
P.P.S. On a neutropenic note: I felt good today! Not quite all the way wonderful(that rarely happens) but well enough to live a normal day. I am trying to be thankful for days like this:) On a little bit less fantastic note:I skipped my shot last night. Should not have done that. I hope I do not end up regretting it:/

Neutropenia or bust

So I believe that I neglected to mention that I have a disease called Cyclic Neutropenia which takes up a good portion of my life. I was born with this ailment, fortunately enough for me. I don't really understand it so well but basically Neutropenia is a reduced number or lack of neutrophils(a type of blood cell that defend the body against bacterial infections). I have the Cyclic version of this which means that the amount of neutrophils that I have varies depending upon where I am in my cycle. My personal cycle runs within approximately a 14-day period. So it takes me 14 days to get from a good amount of neutrophils to a low amount of neutrophils and back again. I was born with absolutely no neutrophils in my body so I spent my first couple weeks in an incubator receiving frequent visits from needles wherever they could fit them into my tiny body. I grew up basically being in and out of the hospital, becoming stronger and stronger as I became older.
Since I have inherited this from my father, who was generous enough to share it with me, the two of us have a special understanding of each other. I am blessed to know someone close to me who can understand what I go through. The symptoms I feel when I 'go low' vary. Every time I go low it is different in an indescribable way. The common symptoms for me are: fatigue, fever, aches, mouth ulcers, infection of any cuts and scrapes one may have on their body, and I am sure more than what I can think of. Sometimes I swear I can almost feel my bone marrow squeezing(because that is where the white blood cells aka neutrophils are made). I take a shot of GCSF every night which keeps me going. Without it I am fairly certain I would not be alive today. I am very fortunate to have it but at the same time I am so dependent on it and it makes me only halfway better it feels. I now do not belong in either the sick world or the well world. I am stuck in between and it can be so frustrating because I never know which one I am going to be in tomorrow or  a week from now or six months from now. It makes it hard to make commitments and plan ahead. Anyway I will post about this more often because it is a large part of my life whether I want it to be or not...The top pic is of the needles I use and the vile that holds my magic medicine, the second one is of my name tag from a Neutropenia convention last summer, and the third is the little card that I keep in my wallet in case I have an emergency. Just wanted to provide some visuals.
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P.S. More information/donations/success stories go here .

Potty mouth

FINALLY found a pair of acceptable geeky 80s/90s jeans. They were on sale at a thrift store and when I went to pay for them I found out they were another 20% off. Grand total or $6.00- not shabby at all! They fit alright so I am looking forward to pairing them with some Keds or something and perhaps, dare I say, a fanny pack? Anyway, I have like at least three sets of cute little china tea sets that I had no idea what to do with up till a few days ago when I needed a place to put a candle(so the wax wouldn't drip). I think it looks supercute:)Also the first pic is of some medication or something my sis and I found in Petco while getting heartworm pills for our dog, Dingo(who, by the way, is most certainly NOT a poop eater!!!). I am a lover of potty humor and it gave me a giggle- and the look on the dogs face! Hehehehaha:))) Immaturity... Love it.
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P.S. OBSESSED with Duffy. This and this and this and most definitely this. I have a major girl crush on her. I want my hair like her. I want her voice, too. She is such a bad a** in her more sassy music vids. A+. 

Mediocrity

Dinner at Bakers Square (Wed. nights if you buy more than a cup of soup you get a free slice of pie!) to celebrate me getting my drivers permit! Paired my beloved boyfriend jeans with a slouchy top and heels and topped it all off with my fave clutch. The whole ensemble didn't quite match all that well but I felt fabulous in it and that's all that matters. Also thinking of growing my hair out. I miss my long tresses:(

Goodies!

Spent the day at the mall with the sis and my mother. Was on the hunt for 'practical school shoes' and came up with this heel. I did get actual practical Minnesota boots as well, don't you fret. Imagine treading out to the bus stop in these babies, 10 degrees below zero, snow in my shoes? Not fun. Anyway we hit up DSW and (I was secretly hunting for some heels I can actually walk in) I came up with these. They (more or less) went with my outfit that I already had on so I slipped off my flats and wore a tight,short skirt with heels. Slutted up the mall. You are welcome. Also these earrings are a new fave of mine-they go with everything.
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Curiouser and curiouser!

"Twinkle twinkle little bat!
How I wonder what you're at!...
Up above the world you fly
like a tea tray in the sky"
Bringing out our inner Alice with this. Thought we could be searching for a mad tea party or something:)

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P.S. Sorry about the large amount of pics there are in this post. I had a hard time narrowing and eliminating. My B.